What We Do

Locked-in Syndrome

Living with locked-in syndrome can be a frightening prospect – feeling trapped and unable to communicate. But having innovative support in place at home can provide the key to maintaining quality of life.

We provide bespoke support for people with locked-in syndrome. There is no standard form of treatment for locked-in syndrome; we take a flexible approach to care, exploring all options for maximising the quality of life for both our clients and their families.

What is locked-in syndrome?

Locked-in syndrome causes a complete paralysis of all voluntary muscles, preventing the person from speaking or moving while remaining fully mentally aware.

How can we help?

We take great care to make sure each of our clients receives the kind of care that works for them. Our expert team of nurses assess every client’s clinical and social requirements to develop a bespoke, comprehensive care and lifestyle plan.

Our personal care assistants are trained in a wide range of skills to support locked-in clients, including skin care, bladder and bowel care, nasogastric and PEG feeding, tracheostomy and ventilator management.

We also work with our clients and specialist support as appropriate, eg. physiotherapists and speech therapists, to develop exercise regimes that maintain muscle tone and implement communication tools, such as  spelling boards or computers that track eye movements.

Our approach to care goes beyond supporting physical health needs, to include a focus on wellbeing. Research has shown that enhancing the quality of life for people with locked-in syndrome is closely linked to their social environment.

We look for innovative ways to support clients with locked-in syndrome to enjoy interaction with their family and friends, and continue to enjoy favourite activities.We work closely with our clients to enable them to develop and maximise their abilities – including through the use of assistive technologies – and support them in taking control over their lives.

Taking a proactive, positive, and problem-solving approach to supporting our clients is central to the way we work; developing bespoke care, tailored to individual needs and circumstances of our clients.